I thought with the cancer now gone, the waiting would end. BOY WAS I WRONG! hahaha So I am still waiting for my two referrals. One to repair my vocal cords that are getting worse. If I could explain it, it seems like when I put my head all the way back looking at the ceiling they’re being stretched/strained and it kind of hurts. Not to mention I have weird “voids” when I feel my neck. Come on referral I’d like my voice back. Thank goodness all my little taste buds have come back!

I’m at the point i’m getting tired waiting for them to call me, I think I may call the one doctor I know I was referred to on Monday.

As a positive, I am back to my normal self, even better actually. I feel healthy, full of energy and life. I can’t wait for July to come around for my victory vacation to the east coast. I totally deserve it! :)

Posted on March 29, 2012 at 4:26:43 PM by Missym (More waiting..., 6 comments, 471 views)

Diane likes this.

Ann sent you a hug.

Wishing you good luck in your journey to deal with the fall-out from the battle with thyroid cancer.

Posted on March 29, 2012 at 6:27:34 PM by Marie

Hope you get the help you need for your voice! So glad you are back to your normal self..that is a wonderful thing! I don’t think it would hurt to call that doctor..hard to wait..take care! A trip in July sounds wonderful! Have a wonderful day! Sending hugs!

Posted on March 30, 2012 at 4:54:48 AM by Eileen

Glad to hear your taste buds are back online and I hope you can see that referral soon- there is nothing wrong with being an assertive patient and making those calls- its your health! The vacation sounds great! I love living on the east coast and if you need any DC tourist tips feel free to MSG me :)

Posted on March 30, 2012 at 4:55:35 AM by Grace

Wishing you all the best getting the best care for your voice.
My vocal chords seemed to get worse for several months after Rads ended. For about 3 or 4 months I couldn’t talk.
My ENT finally sent me to a speech therapist after 8 months.
It did help. I learned to pay attention to breathing, & to always have water at the ready when I talk. Long sentences are still killer & I’ll probably never get back to singing voice. ....But I’m alive & have regained about 70% of my vocal skills, some days 80%.
Glad to hear you’re full of energy and life, and all eager to keep dancing that NED Happy Step.
Hugs, Nicole

Posted on April 2, 2012 at 12:52:05 AM by Nicole (Lady Of The Larynx)

Yeah, I have one doctors name that I will be phoning to see if I can get into him. I don’t know what speciliast i’ve been referred to for my voice. I just know the clinic he sent me to. So I guess i’ll take a shot in the dark and phone them as well. See if they are least got my referral and if they plan on giving me an appointment to see a doctor soon.

We are getting in our tourist guides right now. We’ll be staying in Canada for the whole vacation. Need to finish seeing my country before I wander to see more of the us. lol So far on the agenda it will be PEI, Nova Scotia, and New Brunswick. I can’t wait. We’ll be in PEI for the lobster festival, that alone will make my whole year. haha I love seafood!

Thanks everyone for the support you guys are always so amazing! hugs

Posted on April 2, 2012 at 5:19:27 PM by Missym

Hoping you have a thorough check-up from the voice specialist. Mine revealed a lot about my vocal chord damage and what not to do (sing) and drink plenty of water. There is hope!

Posted on April 2, 2012 at 8:45:40 PM by Monique

Results

So the results of my body scan came back, and I’m pleased to announce they were normal. No cancer left in me, the radiation did it’s trick. Unfortunately though because my voice is getting worse and never recovered from Surgery in September I am being sent to see an ear nose and throat specialist which will probably results in vocal cord surgery to repair the damage caused when they removed my thyroid.

Now i’m waiting to be passed off to a closer Endocrinologist (4hour drive away instead of 8hours yay!) to monitor my thyroid levels. Dr Hanna got me to do blood work for my thyroid levels on my last visit to him, I get to call him tomorrow to see if my dose will be increased as I still feel hypothyroid.

I am beyond thrilled I don’t need to go back into the lead vest room as Nicole called it in a previous blog comment. lol So I’m thrilled to be done with cancer treatments, now I need to repair my body so that I feel normal again and fix the damage it’s caused to my body. Which is oddly enough a longer road then actually getting rid of the cancer.

Nonetheless YAY!

Posted on February 5, 2012 at 6:18:48 PM by Missym (Results, 6 comments, 631 views)

Paul, Grace like this.

Yes, I think it IS a longer road than getting rid of the cancer. All the best to you during this time! I hope you won’t lose your voice, or if so not for very long. Are you able to get out and enjoy the abundant snow up there? Snowmobiling, skiing, skating and such, or is it still too cold?

Posted on February 6, 2012 at 6:00:12 AM by 1 Very Palpable Hit

I haven’t enjoyed the snow much other then to shovel it lately. LOL It’s warming up a lot lately. I am going to take my puppy for a walk today so he can play in it. He adores the snow.

Posted on February 6, 2012 at 10:41:57 AM by Missym

YAY for you! So glad to hear your results are good, and hopefully the voice thing will correct itself. Sometimes that does improve with time after surgery and then getting your thyroid med dose correct. One of the symptoms of being hypo is voice hoarseness.

-Kathy

Posted on February 6, 2012 at 8:24:34 AM by Private User

I’m hoping it slowly corrects itself while I wait to see the specialist. lol I just got off the phone with Dr Hanna and my thyroid levels are still to low. He told me to do another blood test in two weeks then we can modify my dosage. So maybe it’s as simple as my thyroid levels not being right. crosses fingers

Posted on February 6, 2012 at 10:43:49 AM by Missym

Fantastic! So glad to hear that your scan results were good. Hugs-Ann

Posted on February 6, 2012 at 9:10:30 AM by Ann

Congratulations Missym on your fantastic body scan results. No more lead vest room, woo hoo!
I’ve never gotten my voice back to normal following all those Rad treatments. For months I lost my voice entirely and carried around a dry marker pad.
Hilarious. I got so that I would print larger as a way to “talk” louder.
I’ve been doing speech therapy for about a month and it has definitely helped. There’s nothing like speech therapy to let you know all your bad vocal habits.
The voice is a very delicate instrument. So it may just be a matter of time for your vocal chords to heal, or thyroid meds, or bad speech habits. Possibly a combination of all 3.
You might consider asking for a referral to a speech therapist, if your voice doesn’t return in the near future.
For me, one of the hardest things about having no voice was not being able to sing to my little white kitty, or tell my orange tabby what a great guy he is. I imagine it’s been agony not to be able to talk to your darling poopie. (I love poopies!)

Yes, we are on the long and winding road, now that we’re cancer veterans. Yet every day alive and cancer-free is another great day here at the Veterans’ Home. It’s wonderful to be back from the war; no parade necessary.
Hugs, Nicole

Posted on February 6, 2012 at 2:26:37 PM by Nicole (Lady Of The Larynx)

I’m so happy for your good results! Woot! Get strong!

Posted on February 6, 2012 at 5:59:10 PM by Private User

Doing my Snoopy Happy Dance! YEAH!

Posted on February 13, 2012 at 10:55:12 PM by Private User